Title Percepcija kvalitete života djece oboljele od dijabetesa Title (english) PERCEPTION OF THE QUALITY OF LIFE AMONG CHILDREN WITH DIABETES Author Diana Jahaj Mentor Rahela Orlandini (mentor) Committee member Ante Buljubašić (predsjednik povjerenstva) Committee member Sonja Koren (član povjerenstva) Committee member Rahela Orlandini (član povjerenstva) Granter University of Split Defense date and country 2016-02-23, Croatia Scientific / art field, BIOMEDICINE AND HEALTHCARE Abstract Kvaliteta života ovisi o općem zdravlju, psihološkom statusu, neovisnosti u obavljanju svakodnevnih aktivnosti, socijalnim odnosima i okruženju. Zdravstveni status je samo dio onoga što ulazi u kategoriju kvalitete života, opisujući tjelesni i emocionalni aspekt.
U istraživanju je korišten upitnik o percepciji kvalitete života djece s dijabetesom. Upitnici su rangirani i posebno prilagođeni određenoj dobi oboljele djece. Upitnik se sastoji od kategorije o općim podatcima, kategorije o subjektivnoj procjeni kvalitete života i zdravlja, te od 7 ostalih kategorija prema kojima se procjenjuje kvaliteta života (tjelesno funkcioniranje, emocionalno funkcioniranje, socijalno funkcioniranje, funkcioniranje u školi, simptomi šećerne bolesti, liječenje i komunikacija).
Sva djeca su oboljela od dijabetesa tipa 1. Kod većine djece bolest je otkrivena uglavnom poslije 2 godine života (97 %). Prosječna dob dijagnosticiranja bolesti je 9 godina. Prosječna ocjena kojom su ocijenili kvalitetu života je 8/10, a najmanja ocjena je 6/10. Prosječna ocjena kojom su ispitanici ocijenili zdravlje je 8/10, dok je najmanja ocjena 5/10. Prema procjeni roditelja u 60 % djece se javlja nedostatak energije, tj. umor, 77 % djece osjeća ljutnju zbog bolesti, dok ih je 60 % nervozno ili mrzovoljno, 43 % ih je zabrinuto da ne bi išli u hipoglikemiju, dok ih je 50 % zabrinuto zbog hiperglikemije, 47 % djece ima poteškoće u održavanju koncentracije u školi/vrtiću, 53 % ih izostaje iz škole zbog odlaska kod doktora. Kod 77 % djece javlja glad, u 50 % se javlja vrtoglavica, te se kod 83 % djece se javlja hipoglikemija, a kod 87 % hiperglikemija. Bol prilikom uzimanja terapije (inzulina) se javlja u 60 % djece.
Dijabetes je bolest s vrlo jakim utjecajem na djecu i njihove roditelje. Uočili smo da bolest ima negativan utjecaj ponajviše na emocionalno funkcioniranje, funkcioniranje u školi i u komunikaciji, ali bolest ne ograničava djecu u fizičkim i društvenim aktivnostima.
Abstract (english) Quality of life depends on general health, psychological status, and independence in performing activities of daily living, social relationships and environment. Health status is only a part of quality of life, describing the physical and emotional aspects.
The study used a questionnaire assessing the quality of life of children with diabetes. Questionnaires were ranked and specially adapted to affected children of certain age. The questionnaire consists of general data, subjective evaluation of quality of life and health, and seven other categories used to estimate the quality of life (physical functioning, emotional functioning, social functioning, and functioning in the school, symptoms of diabetes, treatment and communication).
All children were diagnosed with type 1 diabetes. In most patients the disease has been detected after 2 years of age (97 %). The average age of diagnosing diabetes was 9. The average score of the quality of living was 8/10, and the lowest was 6/10. The respondents assessed health with average score of 8/10, while the lowest score was 5/10. According to the parents’ assessment lack of energy occurred in 60 % of children, i.e. fatigue, 77 % of children felt angry with themselves for being ill, while 60 % were nervous or ill-tempered, 43 % of children were worried that they would experience the episode of hypoglycaemia, while 50 % were worried about hyperglycaemia, 47 % of children had difficulties in maintaining concentration at school / kindergarten, 53 % were absent from school for seeing the doctor. Hunger occurred in 77 % of children, dizziness in 50 %, and hypoglycaemia in 83 % and hyperglycaemia in 87 %. Pain when taking therapy (insulin) occurred in 60 % of children.
Diabetes strongly affects children and their parents. The study established negative impact mostly on emotional functioning, functioning in school, and in communication, but it did not limit the children in physical and social activities. The sick children have to deal with complex and demanding daily regimen for treatment with negative effect on the quality of life.
Keywords
djeca s dijabetesom
kvaliteta života
inzulin
Keywords (english)
children with diabetes
quality of life
insulin
Language croatian URN:NBN urn:nbn:hr:176:366617 Study programme Title: Nursing (university/undergraduate) Type of resource Text File origin Born digital Access conditions Open access Terms of use Created on 2019-11-22 11:55:55
